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Beyond Compliance, Adherence, & Concordance - Supporting The Patient’s Implementation Of Optimal Treatment

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The Misdiagnosed Patient

March 21st, 2007 at 4:31 pm · Allan Showalter, MD · Patient Education, Patient's Role · 1 Comment

Last week, I serendipitously discovered within hours of one another, Jerome Groopman’s How Doctors Think,1 which focuses on the reasons doctors misdiagnose a significant number of their patients and, because of a comment she made to a post on this blog,2 the story of Trisha Torrey, who was the victim of a misdiagnosis of potentially catastrophic proportions.3

Trisha Torrey’s medical misadventure is fascinating - as well as scary - reading that complements Groopman’s book. That narrative can be found at
~Who is Trisha?~

Ms. Torrey’s misdiagnosis and her subsequent course led to her current career as a patient advocate and the creation of her advocacy web sites at ~EPA Websites~ and her blog at ~Every Patient’s Advocate~


While Ms. Torrey’s inclusion here is primarily the result of the fit between her medical history and Groopman’s book, I also believe that patient advocates could play an important role in improving adherence by helping, as Groopman suggests, patients understand how their doctors operate.


Footnotes

__________
  1. See Helping Patients Help Their Doctors
  2. The comment referred to my March 12, 2007 post, Coaching Patient Compliance
  3. Her comment had no direct connection to her history of being misdiagnosed

Tags: Patient Education · Patient's Role

1 response so far ↓

  • 1 cervantes // Mar 22, 2007 at 8:13 am

    Thought I’d return the favor! As it happens, I went into surgery some years back thinking I was going to have my appendix removed, and woke up 8 hours later without my ascending colon. The surgeons had found a lesion on the cecum which they presumed to be a carcinoma, and they had gone ahead and done a right hemicolectomy, only to get back from pathology that I had a diverticulum. Various adventures ensued. I believe this experience — more the aftermath than the misdiagnosis per se — helped steer me toward medical sociology and some of the particular problems I now study.

    Anyway, glad to find your blog, I’ll give you a link.